ABOUT THE FUN DAY

The fun day was first established in 2015 in the memory of Dylan James Sinclair who sadly passed away in March that year at the age of 7 due to having a rare and fatal illness called Battens Disease, a neurological disease that affects around 200 suffers in the UK.

Dylan’s Father James set about organising the fun day to raise funds for the Batten Disease Family Association (BDFA) to raise awareness and also give back to the charity as they had done so much to help Dylan and support the family. The first year saw around 1200 people come out to enjoy the sunshine and £1252 was raised.

James never intended the Fun day to be anything more than a one-off event but it was so well received he carried on the following year and it has now become an event which many people look forward to and attracts people from miles around. Each year the fun day has grown in success attracting around 5000 people in 2016 and 8000 in 2017. So far a combined total of £9,400.00 has been raised for the BDFA and we hope this year will see the trend continue and then some!

James and a team of volunteers run the fun day, supported by sponsors, local businesses and individuals who help to meet the costs of running the event. All profits are then donated to the BDFA.

Created in the memory of
Dylan James Sinclair. 22/05/07 – 21/03/15.

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Our mission is to enable everyone who is affected by Batten disease to live life to the full and to secure the care and support they need until we find a cure. The BDFA offers informed guidance and support to families and the professionals who work with them as well as actively increasing awareness of the disease and funding future research to identify potential therapies and ultimately a cure.  – Batten Disease Family Association

Event organised and promoted by J. Sinclair in aid of Batten Disease Family Association UK. Charity Number – 1084908.

 website by Plant Creative